000			03605cam a2200553 i 4500
001			u159730
003			SIRSI
005			20240916205810.0
008			120515t20132013ilu b 001 0 eng c
010			_a 2012019820
015			_aGBB281711 _2bnb
020			_a9780226924977 _q(cloth ; _qalkaline paper)
020			_a0226924971 _q(cloth ; _qalkaline paper)
020			_z9780226924991 _q(e-book)
020			_z0226924998 _q(e-book)
035			_a(OCoLC)783150279
050	0	0	_aRJ255.5 _b.T555 2013
060	0	0	_a2013 A-243
060	1	0	_aQZ 52
082	0	0	_a618.92/01 _223
092			_a618.9201 _bT584s
100	1		_aTimmermans, Stefan, _d1968- _eauthor.
245	1	0	_aSaving babies? : _bthe consequences of newborn genetic screening / _cStefan Timmermans and Mara Buchbinder.
260			_aChicago ; _aLondon : _bThe University of Chicago Press, _c
300			_axii, 307 pages.
336			_atext _btxt _2rdacontent
337			_aunmediated _bn _2rdamedia
338			_avolume _bnc _2rdacarrier
490	1		_aFieldwork encounters and discoveries
504			_aIncludes bibliographical references and index.
505	0		_aIntroduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening.
520			_aIt has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early-detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives, inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In this book the authors evaluate the consequences and benefits of state-mandated newborn screening, and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology. Drawing on observations and interviews with families, doctors, and policy actors, the authors offer this ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns.
650		0	_aNewborn infants _xMedical examinations _xSocial aspects _zUnited States.
650		0	_aNewborn infants _xDiseases _xDiagnosis _xSocial aspects.
650		0	_aGenetic screening _xSocial aspects _zUnited States.
650		0	_aMedical screening _xSocial aspects _zUnited States.
650	1	2	_aGenetic Testing.
650	1	2	_aNeonatal Screening.
650	2	2	_aGenetic Diseases, Inborn.
650	2	2	_aInfant, Newborn, Diseases.
650	2	2	_aInfant, Newborn.
650		7	_a44.02 philosophy and ethics of medicine. _0(NL-LeOCL)077596218 _2bcl
650		7	_aGenetic screening _xSocial aspects. _2fast _0(OCoLC)fst00940096
650		7	_aMedical screening _xSocial aspects. _2fast _0(OCoLC)fst01014647
651		7	_aUnited States. _2fast _0(OCoLC)fst01204155
700	1		_aBuchbinder, Mara, _eauthor.
830		0	_aFieldwork encounters and discoveries.
949			_cc.1 _lCIRCSTACKS _tBOOK _xPRINT _p
999			_a618.9201 T584S _wDEWEY _c6282 _i51994001699919 _f6/28/2023 _g2 _lCIRCSTACKS _mLRC _p$30.00 _rY _sY _tBOOK _u6/17/2020 _xPRINT _d6282